Ariel_fight san YouTube ABOUT
※原在忙しく、2週間に1回の更新を目指してます（不定期）
I've been busy lately, so I'm going to try my best to post about twice a month.
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管理栄養士だった22歳の私が、働き始めて半年ほどでT細胞芽球性悪性リンパ腫（血液がん）になりました。
更に、悪性リンパ腫が気管に転移したため気管軟化症になり（そのため健常者の方に比べて声は聞き取りにくいです）、低酸素脳症の後遺症で左片麻痺で三重苦な私の努力を記録の為にも綴っていきます。
（手帳1種2級）
※一時心肺停止したらしいです（今日2022.4/1に聞かされました笑）
I was a dietitian at the age of 22, and I had T-cell lymphoblastic lymphoma (blood cancer) about six months after I went to work.
Malignant lymphoma metastasized to the trachea, resulting in tracheomalacia*, respiratory failure due to tracheomalacia, hypoxic encephalopathy due to respiratory failure, and left hemiplegia due to hypoxic encephalopathy.
*As an after-effect, the volume of my voice is smaller than that of a normal person, so it is difficult to hear my voice.
Posting my efforts, which are triple pain, as a journal.
(Japanese physical disability certificate: Type 1, Class 2*)
*Severity at a 2 on a scale of 1(High) to 7(Low)
- I had a cardiopulmonary arrest once. (I was told on April Fool's Day 2022. lol)
各動画の説明は毎回読んで頂けると幸いです！
Hopefully, you can see the post description.
難病を抱える方々の少しでも励ましになれば、そして身障者の大変さ、思った（思っている）ことを少しでも色々な人（健常者の方含め）に伝えたいと思い始めます。
「少しでも可能性があるのなら、このままじっとしてるのは嫌！声は出なくても諦めたくない！他にもこういう見えない（見えづらい）病気や障がいがお持ちの方がいらっしゃることを知ってほしい！」
という精神でやってます。
I hope it will be an encouragement to people with intractable rare diseases.
I started this because I want to tell as many people as possible about the anguish and feelings of people with disability.
My slogan is:
"Can't just sit around if there's a future!"
"Even though I can't speak, I don't want to give up."
"Want people to know about people with diseases and disabilities."
私の声は病気に掻き消されたの
普通に歩くこともできなくなったの
でも、もう泣かないし崩れおちたりしない
私を黙らせようと歩けなくさせようと生き続けてやる
若いからって見くびらないで
障がい者や見えない難病を持っている人を知ってもらうためにも声を上げるの
突然病気に投げ込まれたって私は壊れるわけない
黙って生きてくつもりはないの
ただ素直に死んだりしない
この今は壊れかけの声と脚でも、少しでも多くの人に知ってもらうんだから
私が怯えるところを見たくても、挑戦し続けるから
だから生き続けてやるの！
Illness took away my voice.
I couldn't walk normally.
But, I'll never cry or break down.
Resist being silenced and repressed to render me unfit to walk.
I'm not afraid, I will keep trying and raise my voice.
keep living!
Don't look down on me.!
I speak up for raising awareness of disabilities and invisible rare diseases.
Even if the disease strikes me, I will not be broken.
I don't want to live in silence.
Can't accept death quietly.
Although my voice and legs are about to break now, I have decided to let many people know.
Even if you want to see me scared, I will not stop trying.
So I stay alive.
コメントや質問等はなんでもどうぞ
Please send me any comments, questions, etc.
2022.2.11〜開始
Start： Feb.11.2022
#車椅子：#Wheelchair life
#片麻痺：#Hemiplegia
#障がい者：#Physical disability
#悪性リンパ腫：#Malignant lymphoma
#スピーチカニューレ：#Speech cannula
#カニューレ：#Cannula
#気管軟化症：#Tracheomalacia
#気管切開：#Tracheostomy
#心肺停止：#Cardiopulmonary arrest
